Participatory research with co-researchers with lived experience of psychosis high risk states
Participatory research with co-researchers with lived experience of psychosis high risk states
This article was authored by our Assistant Professor Mag.a Dr.in Raphaela Kaisler, MSc MSc, from the Department of Psychology, along with other researchers. For the complete list of authors, please refer to the linked article.
Abstract
Background: Although in psychiatric research prevention and participation are both considered increasingly important, there are few participatory research projects with individuals with psychosis high risk states (ultra-high risk for psychosis; UHR). The aim of this project was to reflect on UHR terminology, diagnostic and treatment guidelines and to identify and implement unmet needs together with people at UHR.
Methods: This project was designed co-creatively from the conceptual phase to the execution. The project team consisted of an equal number of mental health clinicians and co-researchers with lived UHR experience. Rules for collaboration were co-creatively developed within the group. Within 4 project workshops, project objectives and unmet needs were identified and prioritized. After setting up an action plan, project plans were implemented within the research group.
Results: Unmet needs of co-researchers with lived UHR-experience included free access to information on psychosis high risk states, opportunities for personal exchange, and the creation of more public awareness and knowledge about UHR. Within the participatory research process, consensus on collaboration and objectives was achieved and heterogeneous perceptions towards the UHR concept and terminology were discussed.
Consensus: The necessity of an adequate terminology for psychiatric conditions was deemed crucial by both medical professionals and co-researchers with lived UHR experience for facilitating a better understanding between psychiatrists and those affected. Heterogeneity of perception illustrates the necessity of addressing individual needs and utilising diverse terminology and explanatory models within mental health.
To the article: www.frontiersin.org
Exploring the subjective experience of researchers and co-researchers with lived experience of psychosis high risk states: a qualitative analysis within a participatory research process
The article was created as part of the Voice project: https://dasvoiceprojekt.at/
Trimmel, M., Renner, A., Mossaheb, N., Friedrich, F., Kaltenboeck, A., Baumgartner, J. S., Kaisler, R. E., Litvan, Z., Voice Consortium, T., & Hinterbuchinger, B. (2024). Exploring the subjective experience of researchers and co-researchers with lived experience of psychosis high risk states: A qualitative analysis within a participatory research process. BMC Psychiatry, 24(1), 899.
To the article: bmcpsychiatry.biomedcentral.com
Abstract
The involvement and engagement of people with lived experience is considered increasingly important in health research. A growing corpus of literature on the involvement of people with lived experience of mental health conditions, including people at psychosis high risk states, can be found. This study aims to explore the subjective experience of researchers and co-researchers with lived experience of psychosis high risk states who were involved in a participatory research project.
