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Mag. Dr. Raphaela Kaisler, MMSc
title | Health Data Democratization in Austria: Patients' Perspective |
type | article in journal with citation index (peer reviewed) |
keywords | health care patient involvement data democratization |
texts | Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided. |
authors | Rada Hussein Andreas Steiner-Hochgatterer Josef Niebauer Thomas Palfinger Kaisler Raphaela Elisabeth |
publishers | Studies in Health Technology and Informatics |
date | 2023 |
ISBN/ISSN/ISMN | 978-1-64368-400-0 (print) | 978-1-64368-401-7 (online) |
DOI | https://doi.org/10.3233/SHTI230412 |
published in | title: Studies in Health Technology and Informatics editors: John Mantas Parisis Gallos Emmanouil Zoulias Hasman, Arie Mowafa S. Househ Martha Charalampidou Andriana Magdalinou publishers: Healthcare Transformation with Informatics and Artificial Intelligence |
volume/issue | 305 |
pages | 18-19 |
contributors | Kaisler Raphaela Elisabeth: moderation advisor workshop lead |
language | English |