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Ass.-Prof.in Mag.a Dr.in Raphaela Kaisler, MSc MSc
| Titel | Co-creating a patient and public involvement and engagement 'how to' guide for researchers |
| Typ | Artikel in Fachzeitschrift (peer-reviewed) |
| Schlagwörter | Co-Kreation Partizipation Leitlinie |
| Texte | Involving citizens in research is not widely utilised across research disciplines and countries. It requires the readiness of researchers and their organisations as well as guides on 'how to' successfully involve citizens in a meaningful way. Including the patient and citizen voice in research activities has been most frequently demonstrated in health research, however, is implemented along various degrees of involvement - from passively receiving information about science to actively involving the citizens in steering projects and research activities. In this commentary, we aim to report a multi-stakeholder co-creation process developing 'Patient and Public Involvement and Engagement' (PPIE) activities across disciplines to provide guidance for researchers and the public. We use Ludwig Boltzmann Society's (LBG) organisational framework as a case study, hence it consists of research institutes ranging from the life sciences to humanities and therefore represents a well-suited research environment for this endeavour. In a co-creation approach - to accomplish a shared understanding of public involvement in research among different stakeholders - a multi-stakeholder group comprising 11 researchers from natural sciences, life sciences, social sciences and humanities, and 13 citizens (such as patient advocates, young people and citizen scientists) were involved. In five consecutive workshops, we co-developed the nature of interactions between citizens and researchers, as well as governance structures enabling meaningful involvement in research. The workshops' content was informed by an initial literature review. As a result of this process, the PPIE 'How to' Guide for Researchers was developed to support the implementation of involvement activities in their research projects according to the public involvement principles. These principles informed assessment criteria for the newly established PPIE Implementation Programme at LBG. It provides funding and support for public involvement activities in research to embed a sustainable and meaningful implementation of public involvement activities in Austria. |
| Autor*innen | Kaisler Raphaela Elisabeth Benjamin Missbach |
| Verlage | Research Involvement and Engagement |
| Datum | 2020 |
| DOI | https://doi.org/10.1186/s40900-020-00208-3 |
| Band | 6 |
| Seiten | 32 |
| Sprache | Englisch |
